January 21st 2009 Wednesday
Hi there on my 15 minute break and decided to jot a few things down. This morning Joshua had to have blood drawn to be sent to Health Walk the Wellness center we are taking him to in February, so they can use it for allergy and cellular testing (I am sure more then that but that's all my brain can remember at the moment)
Anyway when he was little blood draws were a piece of cake (chocolate of course!!)
Well as he gets older this is not the case, today it took my husband to hold him, and a tech to hold his arm, plus the phlebotomist who had to draw the blood when she said "OK just a little poke" he started screaming at the top of his lings "not a little pokie, big pokie, BIG POKIEEEEE, the pokie hurts" The people in the waiting room probably thought they were cutting his arm off the way he was screaming out.......when I think of it, it was painful for him and I know this but it was a quick blood draw and done in a few seconds but his screaming was so loud I have to laugh because it was seriously like he was getting surgery without any anesthetic........ When it was over he continued to hold his arm straight out (the way they have him hold it to draw the blood) but he holds it straight out at shoulder length, even though he was all done he held it that way all the way home in the car, the entire time at home getting ready for school, he even tried to eat his breakfast with it sticking straight out, and when he got to school he was still doing it just not as high up, you could tell when he would forget about it his arm would start to relax and he would let it fall, but as soon as he remembered man out it would go as high as ever. Hopefully he did not hold it out the whole day at school. Poor Jacob who was in the room when Joshua got his blood drawn was a bit traumatized, when he got up out of his chair he said "I don't like blood Daddy" but Gary told him it was fine and he was not getting his blood drawn, the look on his face was pure relief! Joshua got over it immediately except for sticking out his arm for over an hour.........if he is still holding out when Gary picks him up it will be very funny.
So today is the 2ND week without his morning dose 1.5mg of the Risperdal, so on Friday night we have decided to take another 0.5mg away from his nightly dosage of 2.0mg, I am amazed and praising God that we have gotten him off of the 1.5mg so far, what a miracle!! As I said before this has been tried before but within a few days, he was back on because his behavior so much worse, but I have not seen any indication that he is even off of the morning dose.......this is an answer to prayer, I attribute this to GOD and for making it possible for Joshua to get the Adult Stem Cell Treatments in December. I will continue to keep you posted on each step we make with Joshua and his progress, regression, and more....whatever happens good or bad, I will put it here.
Their is an article in our newspaper today that has a link:
TITLE = Give your brain an electric shock, learn stuff faster.
It talks about transcranial direct current stimulation (tDCS).
I found it quite interesting, not exactly what we are doing with Joshua but very close. It states that Later this week, the Proceedings of the National Academies of Science will publish a paper that describes how stimulating the primary motor cortex can help people learn to perform a challenging task involving fine muscle control.
It also says: Strokes and many other types of brain damage often force their victims to relearn basic motor skills, from speech to walking. Given that tDCS is noninvasive and may help speed to recovery of these patients, I'd expect to see tests of its efficacy in the near future.
Very Promising!!
OK break over gotta run, be back soon ~~~~~ Enjoy your Wednesday!! ~~Lori
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