Friday, January 23, 2009

Joshua's week, CBS EVENING NEWS REPORT ON STEM CELL TRIAL OK'd.......a weekend off BIG SMILES :) !

January 23rd, 2009 Friday








TONIGHT ON THE CBS EVENING NEWS:


Stem Cell Study Gets Federal Go-Ahead Starting This Summer, U.S. Company Will Undertake Spinal Cord Treatment Research

Be aware this is an embryonic trial, this is not the Adult Stem Cells like Joshua received (Umbilical Cord Cells) they are however the same format of cells they are generic and undesignated.

At this point I know they use eggs that are donated and then with a use of a particular procedure (these eggs do not get fertilized they are "tricked" by the procedure) the egg thinks it is fertilized, but since it is not, it can not form a human, it can only form a cell then they harvest off of that cell and grow more. I am at this point not agreeing nor disagreeing with this procedure, my Christianity has me torn at this point if it was a truly fertilized egg (a fetus) then I can not endorse it (please no nasty grams for my personal beliefs I just do not endorse abortion) but when it is an egg that is going to just be destroyed otherwise, and is truly not fertilized and can not form into human life (no heartbeat!) then I am 100% for this and am excited about it for those choosing to do it! I am wondering if this is truly the case or are they are lying (about the fertilization process "trick")


Well we were going to start giving Joshua only 1.5mg of his Risperdal tonight dropping it down another .5mg........but Gary out of habit forgot and gave him the 2.0mg, so tomorrow night for sure we will begin the next phase of weaning off the med.


I do have good news though Joshua is now using the expression "hurt feelings" I asked him about school today and he said one of his classmates names "hurt my feelings today" for Joshua this is a huge expression for him to actually understand...... the light has turned on and he now understands what it means to have your feelings hurt, he would always say "I am sad." But in the last week he is able to tell us who or how his feelings got hurt, it is very promising and a big step for him, expression of feelings I feel is very important and he is able to express his feeling very well but he can now pick out "why he is sad inside or upset" not just because he is mad, it is because his feelings may be hurt. Now that he has opened that up he has been less likely to get so upset about some thing as he understands that his feelings are hurt and that he can get past it.


Also Joshua always tells me he is "sad" when I leave for work or he will say "I will miss you mommy" but today he said "Mommy I am sad because you are going to work" because being the link to tie the two together in a good sentence with the expression of feeling with the cause of the feeling included without me prompting his reply by saying "why are you sad?" and his reply being "I will miss you" he is using the because word appropriately, before this last week I would ask a question to a statement he would have made and he would say "because, because.....because.........." and then throw in the answer in another statement not link it all together.
I hope I am explaining it right so ya'll get what I am trying to say........... We are noticing things weekly with him and we are not at the 8th week since the stem cell therapy yet
(remember they told us 8 to 12 weeks after we should notice little snippets of what will be improving) So in the last 6 weeks since treatment many things have happened already, I am excited for the future and to be able to actually report the changes without a doubt. This treatment as I have said over and over needs to be trialed for Autism here in the US. This way others will be able to monitor the changes and get this treatment here available to all, weekly I am amazed and give praise to GOD for the healing.


Yeahooo the weekend is here, finally two days off in a row, they will fly by I am sure but I am just so happy to have them I do not care, I am going to stay in my jammies all day tomorrow and be a bum!! How fun is that?? Doesn't take much to entertain me these days ha ha! Work went well today which is very surprising but hey I will take it when I can get it!!

We are almost ready to offer a new item on our website store: We will be selling patterns tailored to a child's measurements for weighted vests!! We will be able to put in the measurements print out the pattern and people can tell us if they want zippers, buttons, velcro, and how much material they will need to sew it. Now someone will need to know how to sew to make one and follow the pattern (of course) but I think this will be a really good thing, many people hit on our site daily with my free "How to make a weighted vest page" it does not have a pattern, but it does have tips on how to make your own. So maybe this can help others and our Organization for Scholarships too. They will be very economical too.
Ok gotta go it is late I am tires and I am going to sleep in (I hope!)
Have a great weekend and keep up the fight, don't give up, don't get down, don't ask why, just stay strong, keep your faith, we will make it through this, each with our own story to tell, and precious children to enjoy!! GOD BLESS YOU ALL~~~Lori

No comments: