January 25Th 2009 Sunday
Well as of last night we dropped nightly dosage to 1.5 mg totaling only 2.0 mg per day down from 4.0mg. He is just fine this morning we have been playing and he is in a great mood.
Last night two times when Gary tried to put the Alpha Stim 100 on him he was not in a deep enough sleep and he aroused and told Gary "take it off daddy" so around 10:15 he was in a deep enough sleep and when Gary put it on that time he did not move.
Since Joshua's dosage of medication is down his appetite is not so huge, you see Risperdal makes people want to eat all day long, Joshua would feel that way, of course he never got overweight which is a big concern of doctors when they start a patient on it, they monitored his weight for months, but he is so "active" it never effected his weight. But the urge to eat was constant as soon as he would finish breakfast he would come back upstairs asking for a snack, and that went on pretty much all day long. But I have noticed a big decrease in the need to eat a lot since the weaning down of the medication.
If he does well on the slight drop in his nightly dose then in a week we will drop it another 0.5mg.........I tell you I just want to stop it and see what happens but I will not do that, never, as the side effects the body can have could be so negative he may wind up back on the full dose. That is just me being impatient as usual :) But when we go to Carlsbad CA to the Health Walk Center I want him as low as possible on the medication, I think it is imperative to get the "real" results of his body without medication, but that is only two weeks away and I do not see him being completely off of it by then, but I will take what I can get.
I just praise GOD for his healing power and for him making it possible for the stem cell treatment Joshua received, as you know I have said so many times that we do not see us being able to take him again so one time would need to do it and I believe one time can do it :)
Yah know when I say do it, I want to say heal him totally, but I believe whatever healing is going to be will be...........I am still in disbelief that we even went to Costa Rica and got the treatment, it is almost like a dream in my mind almost like I walked through the whole thing in a fog, like it happened but didn't happen...........I mean I have pictures to prove it and I know it did happen ......I just do not know how to explain it
I dream of Costa Rica often, almost like we live there or are moving there, it is odd............if I could move there and stay at the Marriott the rest of my life I would not complain that was so comfortable...............I never knew the huge difference in a nice Hotel and a huge phenomenal Resort.................I may never stay in a place like that again but I tell you what it sure makes you wish you had the money to enjoy that kind of place at least one time a year. I so miss their white chocolate mocha's with the cinnamon powder YUM!!! Also the very nice women Isabel that made them for me.
Anyway speaking of travel in two weeks we will be leaving to Carlsbad to the Health Walk Wellness Center for 3 days of some testing and some treatment for Joshua, I am really looking forward to what his blood tests are going to reveal, like what are they going to find? Will it answer our impending questions that we have had for so long? I am so excited to share the results with all of you I know they can look so far into Joshua with these tests they will find heavy metals, allergies, cellular information and so much more and not only am I excited for us I believe these are answers every child with Autism needs...... to know how to treat them successfully 100% naturally and it is SO MUCH MORE AFFORDABLE then most, I would much rather do this then go through a DAN doctor, as only a handful of places have the technology they have to do what they do I mean literally they can look inside of your body and break it all down and treat it correctly no guessing, no maybe, no we will see if this works..........I think it is priceless to find exactly the issues that are wrong intestinal, cellular, neurologically, etc.... and have the natural options to treat it right there at your finger tips. This is what I believe at this point, but after this all happens will be the true testimony, then I will not be unsure, I can tell exactly what happened, how it happened, and what we are doing for it, then I can tell each of you how it is working for Joshua. I am even thinking in about a year when I save up some money that I may have some of the testing done on me to find the root of my excessive tiredness, depression, and migraines and find out the exact way to treat it naturally, I have spent a lot of money on supplements and more to help but nothing has ever worked great only two things have made a difference in the intensity of the migraines and that is two B Complex vitamins daily and large amount of vitamin C. But my whole body still feels crappy, almost numb to things, the tightness in my neck and shoulders from stress is so bad I sit all day long be it at home or at work with a heating pad behind me. I know many of you get what I am saying you feal the same way.....here is the clincher I have felt that way long before Autism came into our family and the stresses of it. When you meet me you would not know I have all that going on because I am able to mask it but I always feel like pretty crappy kind of happy and crappy at the same time hahahaha...............I have feal old, ever since I turned 24 I have felt like this, my bad first marriage did not help 14 years of hell...... since the age of 16 till I was 30....I will be 40 this year in July. I think I might have aparty and your all invited!
OK so guess what it is snowing here! It snowed over Christmas but once that whole storm passed after about a week and a half it has been sunny everyday and beautiful of course cold and frosty in the mornings but so nice in the day it was the type of weather you just want to go out for a walk in with a light sweater on. It has rained some over the last two days and real cloudy, when I got up this morning it was snowing, Gary and the boys are going outside right now to "play" in it the kids are so excited they are ready to cry because Daddy is not moving fast enough to get them all bundled up and outside to play.............. he is doing the best he can, but you know kids it is never fast enough for them. So out they go into the snow and I am positive when they come in Jacob will be crying because he loves playing outside and never wants to come in.
Yesterday the Lawyers from our mortgage company called, they are in the mortgage resolution stage, it is a process that has to happen, we already know we can not afford the payment at all, we will try the short sale option which I already know it will not sell, the home was worth $335,000.00 last December 08' now it is worth $205,000.00 due to the mortgage crisis. We would love to have a deed in lieu of foreclosure done, where we sign over the deed and they do not have to foreclose but they said that is not offered in our options, but we are still shooting for it anyway that is one of the best things that could happen for us, then we will not have them coming after us for whatever the amount of money they do not get from the short sale or when they auction it off. Plus the VA loan would not have to pay the secured part they promise the bank when you get a VA Loan, we already know we will have to pay the VA Loan portion back if it does indeed foreclose we were already aware of that and I think that is over $70,000.00 whew!!!! But anyway it looks like we will have at least 3 months until we have to move, that is nice, the whole process of not knowing is the bad part. The whole thing is just so sad but after we both lost our jobs and everything we could not afford the house...........unfortunately this is a common occurrence these days and that is a tragedy!
Well off I go to, I have bills to pay yuck! Back to work tomorrow..........I will not complain about that (even though I want to) I will keep a post of Joshua moods over the week and see how the newest drop in his medication pans out.................
I pray it all does, I pray daily we are doing the right things for all of our kids (Gary and I), that we are making good decisions......and being good parents and fulfilling the needs of our kids........I am sure there is always better we can do, I will keep trying while also trying to keep myself sane....... hahahaha.
Love ya xoxoxoxoxo~~~Lori
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